Professor Marcus Longley and Amy Simpson
Welsh Institute for Health and Social Care (WIHSC)

‘How would patients regulate new medicines?’

Synopsis: A recent Citizens Jury consisting of people with serious and rare disorders spent five days considering how the risks and benefits of new medicines should be assessed. What factors were relevant, and how should they be weighed? Should regulators be more permissive? And what role should patients have in all this? Professor Marcus Longley and Amy Simpson, from WIHSC, University of Glamorgan, describe what happened when the jurors got to grips with the evidence, and discuss what it all might all mean for the future of medicines’ regulation in Europe.

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