We welcome you to the inaugural in-person meeting for the Wales Rare Diseases Research Network.

This all-day meeting will include people with lived experience and advocate organisations, clinicans, researchers, and industry representatives. We hope the attached agenda will start to build a community of interest that will support the greater access to rare disease research in Wales. Combining collaboration, networking, and discussion to promote enhanced support to our organisations and communities to deliver on all-Wales grant applications.

Oral presentations and poster presentation submissions will be gathered for the event via Oxford Abstracts: https://app.oxfordabstracts.com/stages/79521/submitter, closing on 12th September 2025. We will judge and select winning abstracts by 18th September 2025.

Light lunch will be provided and there will be opportunities for networking.

If you would like to learn more about the Wales RDRN Inaugural meeting, click here.